Editor's note: This story was updated on May 7, 2025, to reflect that the National Institutes of Health and the U.S. Centers for Medicare and Medicaid Services announced a partnership on that day ...

The Department of Health & Human Services is reportedly not creating a national autism registry, which seemingly contradicts statements made by the director of the National Institute of Health last ...

A statement that denies the U.S. Department of Health and Human Services is compiling an autism registry, but says instead that it is creating a sweeping database of existing health records, has done ...

The NIH's proposed autism registry, though walked back, raised concerns about data privacy and fueled anxiety within the autism community. The appointment of discredited researcher David Geier, a ...

Staff at the Thompson Center for Autism and Neurodevelopment are concerned about plans to create a registry of Americans with autism. Health Secretary Robert F. Kennedy Jr. has declared a “massive ...

The National Institutes of Health will use information from federal health insurance programs Medicare and Medicaid to create a "real-world data platform" to determine the cause of autism, the agency ...

NIH Director Dr Jay Bhattacharya previously announced plans to develop "national disease registries, including a new one for autism" as part of a larger research effort. HealthDay News — The US ...

Parents of autistic children in Cumberland County express concerns about Health Secretary Robert F. Kennedy Jr.'s plan to use Medicaid and Medicare data for autism research. Concerns are raised about ...

NEW YORK, NY (Reuters) - Health Secretary Robert F. Kennedy Jr has vowed to address rising U.S. autism rates as a top health priority for the Trump administration. Last month, he pledged $50 million ...

(CNN) — The US Department of Health and Human Services on Wednesday unveiled a pilot program for the National Institutes of Health to tap into Medicare and Medicaid data in its search for the root ...

The U.S. Department of Health and Human Services on Wednesday unveiled a pilot program for the National Institutes of Health to tap into Medicare and Medicaid data in its search for the root causes of ...