In a major policy decision announced on Rare Disease Day, Kerala''s Health Department has extended free access to the high-cost drug Risdiplam for patients diagnosed with Spinal Muscular Atrophy (SMA) ...

Kerala's Health Department extends free Risdiplam supply to Spinal Muscular Atrophy patients up to 25 years, broadening the previous limit of 12 years. This initiative under the CARE program, launched ...

Thiruvananthapuram: As part of Kerala's rare disease protection initiative, CARE support for the expensive drug Risdiplam was ...

JESY Nelson has revealed a brand new video showing her twins holding hands as they laid back in their double buggy. The ...

JESY Nelson has shared an adorable new video of her giggling twin girls. The pop star’s mum Janice can be seen holding one of ...

Tirupati: The Union govt came to the rescue of 11-month-old Jampala Mangala Punarvika from Kurnool district, who was battling Spinal Muscular Atrophy .

Gemma Biotherapeutics ("GEMMABio"), a clinical‑stage global genetic medicines company, announced today that the first patient has been dosed in the Phase 1/2 CHARISMA clinical trial of GB221, an ...

Among the rare diseases identified in the 11 persons are Duchenne muscular dystrophy (DMD), spinal muscular atrophy (SMA), Noonan syndrome and Hunter syndrome — both genetic conditions ...

Vijayawada: Marking World Rare Disease Day, the Amaravati Rare Diseases Organisation (ARDO) organised the “3K Run for Rare–2026” awareness programme on Friday at BRTS Road near Sarada College ...

KURNOOL: Doctors will soon begin advanced medical treatment for Punarvika, an 11-month-old girl from Veldurthi mandal headquarters in Kurnool district who is ba ...

The president's annual State of the Union address is tonight. Who are the guests coming with central Ohio's congressional ...

The 11-month-old girl depends on extremely expensive life-saving injection The girl is suffering from Spinal Muscular Atrophy ...