With three sons with Duchenne MD, columnist Betty Vertin has little time for housework, making her regret not giving the other kids chores.
Columnist Robin Stemple struggles to feel grateful on difficult days with FSHD, but still tries to recognize his many ...
A Phase 1/2 clinical trial testing SRP-1003 for myotonic dystrophy type 1 is progressing with higher doses as planned.
Columnist Betty Vertin's track career ended years ago, but she never stopped lifting weights — only now its the emotional weight of Duchenne.
New research shows DMD is marked by abnormalities in muscle development in the womb, supporting the potential of a therapy ...
Columnist Shalom Lim reflects with gratitude on how he's found purpose by supporting other Singaporeans on their own health ...
The FDA updated prescribing information for Elevidys with new safety warnings and limiting its use to DMD patients who can ...
Betty Vertin, who lives in Hastings, Nebraska, has three sons with Duchenne muscular dystrophy, the first diagnosed in 2010 at age 4 and the other boys within the following year. She shares how her ...
Shalom Lim, who lives in Eastern Singapore, was diagnosed with Duchenne muscular dystrophy at 4 months old in 1996. He shares how small daily habits and self-compassion help him stay motivated while ...