His lungs could barely hold on. But he couldnโ€™t contain himself when he saw his mom. - Guilherme Granda Moura had been struggling for his life for 15 days. One day, his eyes opened and he only had one wish: To see his mom. Life has not been easy for little โ€œGuiโ€. His strange illness has taken a toll on his body, harmed his skin and wreaked havoc on his body. This is what the mysterious Epidermolysis bullosa causes. | Vitamin
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His lungs could barely hold on. But he couldnโ€™t contain himself when โ€ฆ
1.1M viewsJul 18, 2023
FacebookVitamin
We think this may be one of the cutest pronunciations of Epidermolysis Bullosa! Mia, the founders granddaughter and the new Directorโ€™s daughter, will hopefully someday be the future of The BFF! #teachthemyoung #epidermolysisbullosa #thebutterflyfamilyfund | The Butterfly Family Fund
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We think this may be one of the cutest pronunciations of Epidermโ€ฆ
339 viewsNov 26, 2024
FacebookThe Butterfly Family Fund
Our brave little baby with Epidermolysis Bullosa (EB) has shown remarkable recovery. The skin lesions are now almost healed, and today we celebrate the special moment of discharge to go home. ๐ŸŒธโœจ EB is a rare genetic skin disorder where the skin is fragile and blisters easily. With careful management, love, and medical support, this baby is ready to continue the journey at home. Stay connected for more updates on neonatal care, recovery journeys, and awareness about rare conditions. #Epidermolys
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Our brave little baby with Epidermolysis Bullosa (EB) has sโ€ฆ
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THANK YOU to everyone following her story on life living with Junctional Epidermolysis Bullosa๐Ÿ’”๐Ÿฅน๐Ÿ˜ญ
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THANK YOU to everyone following her story on life living with Junctiโ€ฆ
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YouTubeDARCIEโ€™S JOURNEY
"Ufa," a young man suffering from epidermolysis bullosa, was considered a burden, but he graduate...
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