Lilliana is the only known person to ever be diagnosed with both Williams and Rett syndromes. She was developing typically for a person with Williams syndrome until her regression started at three years old. Lilli then lost many of the skills she once mastered. She expresses through her communication device that it is “frustrating” to no longer be able to communicate as she once could. Lilliana and her family are now trying their best to navigate a situation with no blueprint. | Special Books by

For kids with Williams syndrome ages 0-5, the early years are crucial for intervention and support. At the WSA, we’re here to help families every step of the way: 🧸 Providing information on early intervention programs that use play to address developmental delays through physical, occupational, speech and music therapy. 📋 Guiding families through the process of creating an Individualized Education Program (IEP) - the roadmap for your child’s public education. 👩‍🏫 Sharing strategies that work

Every year, many families in the U.S. begin the journey, and face the need for answers and support that a diagnosis of Williams syndrome sets in motion. For 40 years, the WSA has been here to help. We provide a wealth of knowledge from both experts who have studied or worked with children and adults medically or educationally, as well as from the networking of our members who have the past personal experiences to connect and share. Today, we need your help. We want to positively impact the life

Callie Truelove is diagnosed with Williams syndrome, a rare genetic condition known to cause a joyful demanor. She loves everybody and even sees hearts in common objects all around her. Callie's parents consider her positivity a blessing, but also try to teach her not everbody can be trusted. | Special Books by Special Kids